Supporting people across South London and Kent, Surrey and Sussex

Patients

23rd January 2017

Upcoming events

 

Keep an eye out for upcoming events here.

Past events

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Genomics is transforming healthcare. Increasingly genomic data is being used for the diagnosis and treatment of disease and ultimately will be used to prevent disease.
The evening involved:
  1. Introduction to Genomics by Dr Kate Tatton-Brown (Consultant in Clinical Genetics at St George’s Hospital)
  2. A talk given by a guest speaker – a Radiologist’s personal experience of genetic testing
  3. An open session with interactive stands – including microscopes, boardgames and some basic DNA testing using smell and taste.

 

See the blog post here for feedback and photos from the evening.

The 100,000 Genomes Project team at Guy’s and St Thomas’ Hospital recently held a focus group for participant’s from both the Cancer and Rare Disease routes of the Project. The main aim of the event was to hear from participants about their experiences so far – their introduction to the Project and the consent process through which they formally agreed to take part in the Project.

 

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The focus group was facilitated by an external Patient Engagement and Information Governance Facilitator and during the welcome session, Professor Frances Flinter (Consultant Clinical Geneticist) gave an update on the Project and its progress. The participants were also able to meet and talk to the whole of the GSTT 100k Project team at the welcome session and after the focus group over afternoon tea.



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