Supporting people across South London and Kent, Surrey and Sussex

Read the 100,000 Genomes Project participant feedback report

27th October 2017

Over 150 cancer and rare diseases participants of the 100,000 Genomes Project recruited at Guy’s and St Thomas’ were asked to complete a patient participation survey. Read a summary of the key findings. The responses have been collected to assess critical points in patient recruitment and to understand each aspect of the experience from a participant perspective. The suggestions will be explored further to improve and develop the service.


95% of Rare Diseases and 96% of Cancer respondents rated their overall experience of the project as excellent or good.

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